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Headlines is the leading UK charity supporting people with craniosynostosis and other rare craniofacial conditions.
Our vision is for a world where the physical, psychological and social impacts of craniosynostosis and rare craniofacial conditions are no more.
What we do
Our objectives are to:
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provide support for people throughout their life to overcome the physical, psychological and social impacts of living with craniosynostosis and rare craniofacial conditions
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facilitate research that seeks to advance understanding, ensures the provision of quality care, and identifies the best treatments for craniosynostosis and rare craniofacial conditions
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raise awareness and educate people to improve public understanding of craniosynostosis and rare craniofacial conditions.
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​We seek to achieve this in a variety of ways, including:
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the provision of a confidential helpline
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producing newsletters, an annual magazine and a range of information leaflets
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arranging events to bring those living with rare craniofacial conditions together, including an Annual Family Weekend
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facilitating support groups
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organising conferences and information days
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working with the NHS and others to improve care for those living with craniosynostosis
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supporting innovative research projects that address our Top Ten Priority Research Questions
