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Useful links & resources
A booklet which provides ideas for activities for children with syndactyly (fused or webbed fingers), to help develop their finger awareness and fine motor skills developed by Headlines trustee and education specialist, Dr Caroline Hilton, from UCL's Institute of Education.
A guide to help you understand some of the words and terms commonly used in the NHS, produced by the Genetics Alliance
NHS website
Information to help you manage your health
Supporting those with a visible difference
For families with disabled children
An alliance of over 200 charities and support groups working together to improve the lives of people in the UK with genetic, rare and undiagnosed conditions.
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