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Our board needs you!
Headlines is seeking a new trustee to take over from our Honorary Treasurer, Charles Edwards, who stands down in September after 7 years...
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Latest news
Jun 6, 2022
New video for parents
Last year, we worked with Dr Nicola Stock and her team from the Centre for Appearance Research at UWE Bristol to produce a leaflet for...
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May 20, 2022
Headlines joins AMRC
We are delighted to have been accepted as an introductory member of the Association of Medical Research Charities (AMRC). AMRC brings...
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Apr 6, 2022
Headline News out now!
Packed full of news and information, Headline News is our annual magazine, posted out to all members. The 2022 issue is out NOW - ...
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Mar 18, 2022
Law firm chooses Headlines as their charity of the year
We are delighted to have been chosen as charity of the year by the wonderful folk at the Birmingham office of global law firm Squire...
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Feb 28, 2022
New Research Strategy launched for Rare Disease Day 2022
We are marking #RareDiseaseDay2022 with the launch of our first-ever research strategy, setting out a framework for our research work...
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Oct 22, 2021
Abseil Challenge 2021
After several postponements as a result of the pandemic, our team of fearless fundraisers finally made it to the top (and bottom!) of...
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Oct 22, 2021
Success in Royal Parks Half for Paul
Congratulations to our chair of trustees, Paul Cornell, who completed the 2021 Royal Parks Half Marathon in London earlier this month...
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Oct 22, 2021
Fun all round at our 2021 Family Weekend
It was wonderful to welcome 80 members to this year's Family Weekend at the Pioneer Centre in Shropshire over the weekend of the...
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Oct 22, 2021
Call for applications to Research Fund
Earlier this year we launched the Headlines Research Fund, which provides small grants for research aiming to identify the causes and...
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Aug 10, 2021
Farewell (but not quite!) to Wendy
We bid a fond farewell to our chair of the past 4 years, Wendy Edwards, at our AGM in June. Wendy served as a trustee of Headlines for...
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Jul 10, 2021
£2,500 donation from Maximus Foundation towards Family Weekend
We were delighted to be nominated by Headlines members Bev and Steve for a donation from the Maximus Foundation UK recently. Steve and...
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Mar 28, 2021
2020 Conference goes virtual
Our long awaited 2020 Conference & Information Day was originally scheduled for 21st March in London - thankfully we took an early...
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