Patient Information - Saethre-Chotzen Syndrome

SAETHRE-CHOTZEN syndrome is a type of craniosynostosis; it was described by Saethre and Chotzen in the early 1930s. Affected individuals have very variable features, making the diagnosis of new cases difficult.

Common features:

For further information:

Family Weekend

The Headlines Family Weekend is our main event, which we host annually and generally runs from Saturday morning to Sunday lunch time.

Please click here for more information.

Donations & Sponsorship

Headlines is almost entirely funded by donations. Continued financial support is essential to maintain the work of Headlines.

Please click here to find out how you can help.


How to Donate to Headlines Craniofacial Charity
Headlines Facebook Page
Headlines Just Giving Page